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The Grace, Grief and Grit Podcast

by Dee Daniels Media Podcast Network · 29 episodes

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Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cu...

Latest episodes

  1. The Power of Support in Grieving: Betsy Kammerud on Helping Children Heal

    In this heartfelt episode of the Grace, Grief, and Grit podcast, producer Dee Daniels and co-host Anne Davis welcome Betsy Kammerud, a bereavement counselor from Hospice Savannah.…

    1 h 06
  2. Countdown to the 4th Annual Hallie Grace Memorial Butterfly Ball for EB

    In this heartfelt episode of the 'Grace, Grief, and Grit' podcast, producer Dee Daniels joins Anne and Joe Davis as they prepare for the fourth annual Hallie Grace Memorial Butterf…

    39 min
  3. Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson

    In this poignant episode of the Grace, Grief, and Grit podcast, hosts Dee Daniels and Joe Davis engage in a heartfelt conversation with Krista Isaacson, a wife, mother of six, and…

    1 h 06
  4. Navigating Life with Grace: Ariana Covarrubias on EB, Resilience, and Authenticity

    In this episode of the Grace, Grief and Grit podcast, producer Dee Daniels and host Anne Davis welcome their special guest, Ariana Covarrubias. Ariana, a 25-year-old from Los Angel…

    47 min
  5. Season 3 Kickoff: Sippin' on Grace, Grit, and Community

    In this episode of the Grace Grief and Grit podcast, hosts Dee Daniels and Anne Davis talk with Marianne Ganem Poppell, owner of Savannah Master Calendar and local business advocat…

    37 min
  6. Finding Strength in Vulnerability: A Father's Journey Through Grief

    Welcome to the Grace, Grief and Grit Podcast Season 2 Finale. Join host Dee Daniels as she sits down for an emotional and inspiring conversation with Joe Davis, a father who has br…

    1 h 02
  7. A Night of Stars and Strength: The LA "Rock4EB" Experience

    In this episode of the Grace Grief and Grit podcast, producer Dee Daniels interviews Anne and Joe Davis about their impactful trip to Los Angeles for the Rock4EB event. --- They di…

    38 min
  8. From Awareness to Acceptance: The Power of Inclusion with Author Dennis Vanasse

    Welcome to the 'Grace, Grief and Grit' Podcast! In this episode, producer Dee Daniels and co-host Joe Davis welcome a very special guest - educator and author, Dennis Vanasse. Denn…

    38 min
  9. Uniting for Change: A Conversation & Call-to-Action on Giving Tuesday

    In this special episode of the Grace Grief and Grit podcast, producer Dee Daniels hosts a full house featuring Jenny Brewster, Tyler Cobb, and Megan Mason, all board members of Her…

    52 min
  10. Integrative Health Therapy with Desiree Sparrow: Mindfulness and Self-Care

    In this episode of the 'Grace, Grief and Grit' podcast, hosts Dee Daniels and Ann Davis welcome special guest Desiree Sparrow, an integrative health therapist, yoga instructor, and…

    52 min
  11. Navigating Hope: Conversations with EBRP's CEO Michael Hund

    In this episode of the Grace Grief and Grit podcast, hosts Dee Daniels and Ann and Joe Davis sit down with Michael Hund, the CEO of EB Research Partnership (EBRP). --- Michael shar…

    43 min
  12. Connections: Capturing the Story with Lyle Dillie

    Meet Lyle Dillie! For dependable photography and videography services that offer quality outcomes with professionalism and attention to detail, your search ends here. We're so than…

    1 h 00
  13. Goals, Dreams, and the Power of Connection: We had another BALL!

    Anne and Joe Davis are here to celebrate the success of the 3rd Annual Hallie Grace Memorial Ball for EB! First - a BIG THANK YOU to all who were able to attend, volunteer, or supp…

    55 min
  14. Grief: Exploring the Communication of Emotions with Dr. Nicholas Christakis

    Nicholas A. Christakis, MD, PhD, MPH, professor at Yale University, is a sociologist and physician who conducts research in the areas of social networks and biosocial science. He d…

    59 min
  15. THIS is what a Support Team looks like! Life Grows Around the Grief: Parents Holding Space for Parents

    "It's not, obviously, the way we would want to meet, but I'm so grateful that we did" - Anne Davis says this in regard to becoming "chosen family" with Kaytlynn and Anthony - paren…

    1 h 17
  16. Looking Back and Looking Foward with Epidermolysis Bullosa | ft. Dr. Peter Marinkovich

    We're grateful to be joined on this episode by Dr. Peter Marinkovich - Associate Professor of Dermatology, a faculty member of the Program in Epithelial Biology and the Stanford Ca…

    59 min
  17. A New Season: Lasting Legacy, Inspiring Impact!

    Welcome to Season 2 of the Grace, Grief and Grit Podcast! We're proud to kick off this new season with Anne and Joe Davis at the table to discuss the upcoming 3rd Annual Butterfly…

    50 min
  18. Kids Grief Support, ft. Child Life Specialist Jessica Correnti

    This is a "lean-in" episode with our special guest Jessica Correnti who is a Certified Child-Life Specialist, an author, and the owner of Kids Grief Support. Kids Grief Support is…

    54 min
  19. Savannah Ghost Pirates - EB Awareness Night is COMING!!

    February 23rd is the NIGHT to shine a LIGHT on EB Awareness with the Savannah Ghost Pirates at Enmarket Arena - it's HEROES FOR HALLIE GRACE night! We're sitting down with Cassie G…

    11 min
  20. Siblings of EB - The Faces and Hearts of True Support

    A few episodes back we had a chance to sit down and chat with Hodges R. Caldwell Jr. - one of the most dynamic, inspiring individuals you'll ever get to know. Hodges was born in 19…

    57 min
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